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Returning after a (long) break... but with an unwelcome visitor! (Parkinson's!)

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23 Sep
8:51am, 23 Sep 2021
39778 posts
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HappyG(rrr)
Great goal setting Euan (and welcome back!) - wish you all the best with your marathon and coping with Parkinson's. :-) G
23 Sep
11:05am, 23 Sep 2021
2524 posts
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CumbriAndy
Welcome back EuanB and thanks for creating the thread.

I'm sure I'm like many people insofar as Parkinsons is a disease I've heard of but know very little about and expect to remain in that state until I or somebody I know is diagnosed. If this thread lifts off, there is every possibility it could contain all sorts of useful nuggets of information that would be helpful for those who find themselves needing to be educated in the future. If you have the time and inclination, I'm sure it would be useful to some if you were able to maintain pointers to some of those key points in the sidebar. For starters, some pointers on recognising the condition as it develops and maybe some links to other resources for managing it could help people. Not a problem if that seems unduly burdensome on top of everything else.

In the meantime, all the best to you, to mathschick and anybody else affected, with your plans and the future.
23 Sep
2:58pm, 23 Sep 2021
14034 posts
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mulbs
Welcome back, thanks for posting, wishing you good health
23 Sep
3:07pm, 23 Sep 2021
79742 posts
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Hanneke
Hi and great of you to start this thread.
I have a fair few clients with parkinson's. It is rife here and associate with lo ger term exposure to chemicals in herbicides, sheep dips etc
One of my clients has had it for a very long time and keeps very active. Although he has deteriorated, his dogged determination to keep going is standing him in extremely good stead. So there you have empirical evidence of keeping active being good. Also: find yourself a good massage therapist for regular "maintenance" to stop yourself from getting too stiff/tight and a knowledgable yoga teacher/suitable class.
If things get worse, have a look at Mucuna. Everyone with Parkinson's who uses it to support treatment/allopathic meds swears by it.
Feel free to PM if you have personal questions.
24 Sep
1:21pm, 24 Sep 2021
5 posts
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EuanB
Thanks everyone for your replies, I still find it very hard to describe what's actually going on, not least because Parkinson's seems to affect everyone differently. There are quite a few really good videos about it, but this TED talk by Tim Hague is one of my favourites:
https://youtu.be/N3zSSV11bLA
24 Sep
1:37pm, 24 Sep 2021
79789 posts
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Hanneke
That is a really good talk.
24 Sep
3:37pm, 24 Sep 2021
34272 posts
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LazyDaisy
Thank you for sharing that, Euan.

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About This Thread

Maintained by EuanB
Hi all,

It's been some time, but I was a member of this site for a few years, and I took a b...

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