for an ad-free Fetcheveryone experience!

Cluster Headaches - Living with them and still being able to run

1 watcher

sugs Mar 2012 10:04am, 2 Mar 2012 203 posts	Quote Pin sugs Just been diagnosed with cluster headaches. Wonder if anyone out there has the same condition. Any advice appreciated.
JohnnyO Mar 2012 10:08am, 2 Mar 2012 11,815 posts	Quote Pin JohnnyO Horrible aren't they? Depends how frequent you get them. Its been years since my last cluster, so I guess I am 'cured' though I don't know what did it. I would have them for about three weeks at a time, about once a year. In between clusters I was absolutely fine though, no symptoms at all and could do anything I wanted. Only used to get them in the evenings too, so I could go to work, just used to come home and sit in the dark until I eventually fell asleep. Miserable.
Velociraptor Mar 2012 10:10am, 2 Mar 2012 19,544 posts	Quote Pin Velociraptor There was a good thread about this fairly recently (which could mean any time in the last decade ... ) What are you using to treat them at the moment, sugs?
sugs Mar 2012 10:14am, 2 Mar 2012 204 posts	Quote Pin sugs Came out of hospital yesterday as had a week of misery and they wanted t check for a bleed. CT ok. They have given me Propranolol to trial and analgesia. This is the first time in over a week that i have felt normal again. Pretty scary as i didnt know what it was.
lammo Mar 2012 10:14am, 2 Mar 2012 4,619 posts	Quote Pin lammo My dad gets these, he takes some sort of steroids i think when in the cluster, but like Johnny is fine for 11 mnths of the year, generally. I don't think he exercises during the cluster, aside from some short slow walks to get some fresh air
lammo Mar 2012 10:16am, 2 Mar 2012 4,620 posts	Quote Pin lammo Hmm interestingly sugs, my dad had a blood vessel burst in the lining of his brain about 25 years ago, which they glued up, he was on propranolol after that for years, but now takes something else.
Velociraptor Mar 2012 10:19am, 2 Mar 2012 19,546 posts	Quote Pin Velociraptor Propranolol is an interesting choice for prevention of cluster headache. Other medications are usually recommended, though only if you're getting frequent clusters and not after a first attack. If it occurs again, don't hesitate to ask your GP for injectable sumatriptan - two doses a day while the cluster lasts.
sugs Mar 2012 10:27am, 2 Mar 2012 205 posts	Quote Pin sugs Thanks - I heard about the injection. I have to go back to clinic in 3 weeks time so will ask them when i go.